ALSCaregivers.org Contributors

Schedule for upcoming ALS Caregiver workshops in St. Louis

ALS Caregiver Workshop Schedule

For those having weakness in 1 or more legs or 1 or more arms. Those who are wheelchair bound. Anyone that has any type of struggle or worry related to bathing 

Overcoming Bathing Challenges

Those who attended the overcoming bathing challenges workshop & want a quick refresher of the key take aways or those who were unable to attend but would still like to benefit

Overcoming Bathing Challenges Workshop Companion Reference

THIS BOOK WILL BENEFIT: Those having difficulty breathing, become short of breath when speaking, have difficulty "catching their breath" or have frequent chest congestion. Those falling asleep during 

Overcoming Breathing Challenges

Those who attended the overcoming breathing & swallowing challenges workshop & want a quick refresher of the key take aways or those who were unable to attend but would like to benefit from demos 

Overcoming Breathing Challenges Workshop Companion Reference

THIS BOOK WILL BENEFIT: Those who have bulbar onset ALS affecting the muscles of the throat, tongue, jaw and face.

Overcoming Bulbar Onset Challenges

For those currently taking infusion medications or considering it

Infusions

This is for anyone who has to navigate insurance & care providers. ensure legal docs are cared for, research available trials & studies, to meet others living the same daily realties of ALS.

Key Documents & Handy Resources

Knowledge sharing for those having weakness in 1 or more legs, foot drop, knees hyper extending or buckling, tripping, falling / loss of balance, unsteady when walking

Overcoming Lower Body Weakness

Those who attended the overcoming lower body weakness challenges workshop & want a quick refresher of the key take aways or those who were unable to attend but would still like to Learn

Overcoming Lower Body Weakness Workshop Companion Reference

This is for anyone with a desire to help others facing similar challenges, inform health care members about the practical side of living with the disease.  Those who desire to be difference makers.

Making A Difference

Those who are considering changes that may be needed to their home to make it functional for all aspects of the disease progression or who are currently struggling with an aspect of their home setup

Making Your Home Work For You

Mobility Choices

THIS BOOK WILL BENEFIT: Those attending the overcoming mobility challenge workshop & want a refresher of the key take aways or those unable to attend but would still like to benefit from the demos.

Overcoming Mobility Challenges Workshop Companion Reference

For those who want to keep their functionality for as long as possible

Keep Your Body Moving: Retaining Range of Motion

Those who attended the retaining range of motion workshop & want a quick refresher of the key take aways or those who were unable to attend but would still like to benefit

Keep Your Body Moving: Retaining Range of Motion Workshop Companion Reference

This is for those seeking or struggling to retain close connections with spouses / partners, children, relatives, friends, co-workers, and health care providers 

Overcoming Relationship Challenges

For those having weakness in their voice (can’t always be heard or often asked to repeat), slurring their words or slow to articulate their words. Anyone who needs help in making their “voice” heard.

Overcoming Speaking Challenges

Those who attended the overcoming speaking challenges workshop & want a quick refresher of the key take aways or those who were unable to attend but would still like to benefit from the demonstrations

Overcoming Speaking Challenges Workshop Companion Reference

For those having difficulty swallowing or eating

Overcoming Swallowing Challenges

Overcoming Swallowing Challenges Workshop Companion Reference

Anyone living with ALS who has a caregiver or is a caregiver of someone living with ALS

Taking Care of the Caregiver(s)

Those having weakness in 1 or more legs or 1 or more arms. Those who are wheelchair bound. Anyone that has any type of struggle or worry related to toileting or needs help with toileting

Overcoming Toileting Challenges

Those who attended the toileting workshop & want a quick refresher of the key take aways or those who were unable to attend but would still like to benefit from the demonstrations.

Overcoming Toileting Challenges Workshop Companion Reference

For those who would like to continue to get "out and about" daily or who are curious about how they continue traveling

Overcoming Traveling Challenges

This is helpful for those having weakness in 1 or more arms, difficulty raising arms up for any length of time, dropping things, loss of grip strength, fingers curling or freezing in place  

Overcoming Upper Body Weakness Challenges

For those who attended the overcoming upper body weakness challenges workshop seeking a quick refresher or those who were unable to attend but would like the benefit from viewing demonstrations

Overcoming Upper Body Weakness Challenges Workshop Companion Reference

People with ALS experiencing more than just progressive physical challenges. This includes those experiencing "emotional mismatch" or not thinking clearly.

When They Just Aren't Acting Like Themselves

This is for those preparing for the end stages of ALS and beyond.  

Journey's End

Caregiver’s collective foundation of real, practical, “life-learned” knowledge related to Overcoming the Daily Challenges of Living with ALS.

Overcoming Challenges of ALS Publications