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Overcoming Speaking Challenges Workshop Companion Reference

by ALSCargivers.org

Cover

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Overcoming
Speaking Challenges
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Workshop Companion Reference
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Practical Knowledge Sharing for Overcoming
the Daily Challenges of Living with ALS
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By St. Louis ALS Association Caregivers
for ALS Caregivers
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Overview
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Introduction
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Overcoming Speaking Challenges
Who We Are
We are not experts. We are not vendors.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
THIS BOOK WILL BENEFIT: Those who attended the overcoming speaking challenges workshop & want a quick refresher of the key take aways or those who were unable to attend but would still like to benefit from the demonstrations.
The Purpose of This Book
THIS BOOK INCLUDES:
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What This Is Not: This is not a therapy or group counseling session. This is not a vendor sales pitch or health care experts providing “book based” advice.
 
What This Is: Video's of demonstrations provided by caregivers covering common challenging speaking scenarios along with the equipment and techniques to overcome them.
For more detailed guidance on overcoming speaking challenges refer to the Overcoming Speaking Challenges Booklet. Last revision 7/18/23

If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
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Who We Are
We are not experts. We are not vendors.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
The Purpose of This Book
What This Is Not: This is not a therapy or group counseling session. This is not a vendor sales pitch or health care experts providing “book based” advice.
 
What This Is: Video's of demonstrations provided by caregivers covering common challenging speaking scenarios along with the equipment and techniques to overcome them.
For more detailed guidance on overcoming speaking challenges refer to the Overcoming Speaking Challenges Booklet. Last revision 7/18/23

If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
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Speaking & Listening Techniques
Video: Speaking & Listening Scenario
Equipment Used During The Demonstrations
◼ Blue tooth speaker (Olafus)

◼ Nebulizer

◼ Voice amplifiers

◼ Wireless Ear hooks with Microphone for Mobile Phone

◼ Wireless / hands-free headsets (e.g. blueparrott) for Mobile Phone
For more detailed guidance on overcoming speaking challenges refer to the
Overcoming Speaking Challenges Booklet.
5
Home
Video: Speaking & Listening Scenario
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Video: Voice Quality Enhancers
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Caregiver Alerts
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Equipment Used During The Demonstrations
Video: Simple Tools To Alert The Caregiver
◼ 2 way radio solution
◼ Baby Monitor
◼ Battery operated wireless doorbell
◼ Bike Horn (electric & manual)
◼ Chtoocy Call System
◼ Electric Whistle
◼ E-Z Call Switched Alarm
◼ Safety Air Horn
◼ Smart caregiver wireless Pager with call button
◼ Smartlife Caregiver Pager sends that messages to mobile phones

◼ Switch: Button, Micro Light Finger, Pad, Pillow, Mercury Tilt, Foot, Head Rest Switch, Mouth (Sip and Puff)
For more detailed guidance on overcoming speaking challenges refer to the
Overcoming Speaking Challenges Booklet.