Overcoming Breathing Challenges Workshop Companion Reference

Overcoming
Breathing Challenges

Workshop Companion Reference

Practical Knowledge Sharing for Overcoming
the Daily Challenges of Living with ALS

By ALS Caregivers for ALS Caregivers

Overview

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Introduction

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Breathing Challenges

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Who We Are

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THIS BOOK WILL BENEFIT: Those who attended the overcoming breathing & swallowing challenges workshop & want a quick refresher of the key take aways or those who were unable to attend but would still like to benefit from the demonstrations.

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We are not experts. We are not vendors.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.

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The Purpose of This Book

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THIS BOOK INCLUDES:

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● Breathing Therapy
● Inhalers & Nebulizers
● Occasional Breathing Assistance
● Full-Time Breathing Assistance
● Cough Assist & Cough Vest
● Drooling & Suctioning

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What This Is Not: This is not a therapy or group counseling session. This is not a vendor sales pitch or health care experts providing “book based” advice.

What This Is: Video's of demonstrations provided by caregivers covering common challenging breathing scenarios along with the equipment and techniques to overcome them.
For more detailed guidance on overcoming breathing challenges refer to the Overcoming Breathing Challenges Booklet. Last revision 5/19/23.

If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org

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ALSCaregivers.org

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Who We Are

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We are not experts. We are not vendors.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.

Loading...

The Purpose of This Book

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What This Is Not: This is not a therapy or group counseling session. This is not a vendor sales pitch or health care experts providing “book based” advice.

What This Is: Video's of demonstrations provided by caregivers covering common challenging breathing scenarios along with the equipment and techniques to overcome them.
For more detailed guidance on overcoming breathing challenges refer to the Overcoming Breathing Challenges Booklet. Last revision 5/19/23.

If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org

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Breathing Therapy

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Equipment Used During The Demonstrations

Exercising The Lungs

◼ Acapella Vibratory inhalers

◼ Medical alert bracelet

◼ Nasal Cannula

◼ Oxygen Concentrator

◼ Oxygen tubing

◼ Portable Oxygen (e.g. Inogen)

◼ Pulse Oximeter (e.g. ChoiceMMed).

◼ Respironics Threshold IMT Inspiratory Muscle Trainer

◼ Voldyne 5000 spirometer

Video: Demonstration of the Lung Functions

For more detailed guidance on overcoming breathing challenges refer to the
Overcoming Breathing Challenges Booklet.

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ALSCaregivers.org

Exercising The Lungs

Video: Demonstration of the Lung Functions

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Breathing Therapy

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Exercising The Lungs (Continued)

Video: Using a Pulse Oximeter

Video: pALS Using a Variety of Devices To Exercise The Lungs

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ALSCaregivers.org

Assessing Breathing Quality (Continued)

Video: Using a Pulse Oximeter

Video: Oxygen and ALS

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Inhalers & Nebulizers

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I Cant Catch My Breath

Equipment Used During The Demonstrations

Video: Breathing Treatments Via An Inhaler

◼ Backup Power (eg. Ego or Go Labs)

◼ Battery powered nebulizer (e.g. Devilbiss).

◼ headmaster collar

◼ Inhaler & Spacer (You can use corrugated tubing)

◼ Medicine Ampule

◼ Nebulizer Mouthpiece or mask

◼ Romex Mask Holder

◼ Standard electric Nebulizer (e.g. Philips Respironics nebulizer)

For more detailed guidance on overcoming breathing challenges refer to the
Overcoming Breathing Challenges Booklet.