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IntroductionLoading...
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ALSCaregivers.orgLoading...
Who We AreLoading...
Upper Body WeaknessLoading...
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We are not experts. We are not vendors. We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
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THIS BOOK WILL BENEFIT: Those having weakness in 1 or more arms, difficulty raising arms for any length of time, dropping things, loss of grip strength, fingers curling or freezing in place Loading...
The Purpose of This BookLoading...
THIS BOOK INCLUDES:Loading...
● Neck Weakness● Arm Weakness
● Hand Weakness
● Drinking and Eating
● Mobile Phone Use
● Computer Use
● Extra Tips
● Drooling
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What This Is Not: This is not a therapy or group counseling session. This is not a vendor sales pitch or health care experts providing “book based” advice.What This Is: Time is not our friend. We don’t have the luxury to learn from our own mistakes and benefit from our own experiences. We must band together and share our learnings (good and bad) creating a collective foundation of real, practical, “life-learned” experiences that exponentially advances everyone. Together, let’s enable everyone facing ALS to more quickly gain tangible and practical ideas to overcome every day challenges. This is a forum to both listen and learn. Until there is a cure, let’s continuously update these materials with our collective experiences providing a springboard of learning to everyone facing down this disease. Last revision 1/29/24.
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
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3Loading...
ALSCaregivers.orgLoading...
Who We AreLoading...
Loading...
We are not experts. We are not vendors. We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
Loading...
The Purpose of This BookLoading...
What This Is Not: This is not a therapy or group counseling session. This is not a vendor sales pitch or health care experts providing “book based” advice.What This Is: Time is not our friend. We don’t have the luxury to learn from our own mistakes and benefit from our own experiences. We must band together and share our learnings (good and bad) creating a collective foundation of real, practical, “life-learned” experiences that exponentially advances everyone. Together, let’s enable everyone facing ALS to more quickly gain tangible and practical ideas to overcome every day challenges. This is a forum to both listen and learn. Until there is a cure, let’s continuously update these materials with our collective experiences providing a springboard of learning to everyone facing down this disease. Last revision 1/29/24.
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org