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Overcoming Mobility ChallengesLoading...
Workshop Companion ReferenceLoading...
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Practical Knowledge Sharing for Overcoming the Daily Challenges of Living with ALS
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By St. Louis ALS Association Caregiversfor ALS Caregivers
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Overview
2
Introduction
3
Overcoming Mobility Challenges
Who We Are
We are not experts. We are not vendors.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
THIS BOOK WILL BENEFIT: Those who attended the overcoming mobility challenges workshop & want a quick refresher of the key take aways or those who were unable to attend but would still like to benefit from the demonstrations.
The Purpose of The Workshop
THIS BOOK INCLUDES:
● Scooters
● Manual Wheelchair
● Electric & Powerchair
● Wheelchair & Scooter Cushions
● Navigating Obstacles
● Wheelchair To Car Transfers
● Vans
● Driving with ALS
● Available Resources
● Manual Wheelchair
● Electric & Powerchair
● Wheelchair & Scooter Cushions
● Navigating Obstacles
● Wheelchair To Car Transfers
● Vans
● Driving with ALS
● Available Resources
To provide an opportunity for ALS caregivers to become acquainted with tools, or concepts that many have not previously been exposed to. Additionally, to enable everyone facing ALS to more quickly gain tangible and practical ideas to overcome everyday challenges.
What Is Included In This Booklet
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Video's of demonstrations provided by caregivers covering common challenging mobility scenarios along with the equipment and techniques to overcome them.
For more detailed guidance on overcoming mobility challenges refer to the Overcoming Mobility Challenges Booklet. Last revision 3/19/23.
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
For more detailed guidance on overcoming mobility challenges refer to the Overcoming Mobility Challenges Booklet. Last revision 3/19/23.
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
To print the book, select this icon
3
Who We Are
We are not experts. We are not vendors.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
The Purpose of The Workshop
To provide an opportunity for ALS caregivers to become acquainted with tools, or concepts that many have not previously been exposed to. Additionally, to enable everyone facing ALS to more quickly gain tangible and practical ideas to overcome everyday challenges.
What Is Included In This Booklet
Video's of demonstrations provided by caregivers covering common challenging mobility scenarios along with the equipment and techniques to overcome them.
For more detailed guidance on overcoming mobility challenges refer to the Overcoming Mobility Challenges Booklet. Last revision 3/19/23.
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
For more detailed guidance on overcoming mobility challenges refer to the Overcoming Mobility Challenges Booklet. Last revision 3/19/23.
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
4
Scooters
5
Equipment Used During the Demonstrations
My Legs Get Tired Walking a Distance Scenarios / Demos
◼ A mobility scooter (e.g. Scout compact travel)
◼ Cane holder for scooter
◼ Basket for scooter
◼ Cane holder for scooter
◼ Basket for scooter
For more detailed guidance on overcoming mobility challenges refer to the
Overcoming Mobility Challenges Booklet.
Overcoming Mobility Challenges Booklet.
5
My Legs Get Tired Walking a Distance Scenarios / Demos
Video: Scooter and Accessories
Allow 30 seconds for videos to load
6
Manual Wheelchair
7
I Just Need Help Every Now And Then Scenarios / Demos
Equipment Used During the Demonstrations
◼ High back reclining manual wheelchair
◼ Standard manual wheelchair
◼ Transport wheelchair
◼ Accessories: Anti-tip devices
◼ Accessories: Arm Trough
◼ Accessories: Chair Brake Handle Extension
◼ Accessories: Foot & heel support pad
◼ Accessories: Full body pads
◼ Accessories: Leg rest extenders
◼ Accessories: Padded neck rest cushion
◼ Accessories: Wheelchair foot support
◼ Standard manual wheelchair
◼ Transport wheelchair
◼ Accessories: Anti-tip devices
◼ Accessories: Arm Trough
◼ Accessories: Chair Brake Handle Extension
◼ Accessories: Foot & heel support pad
◼ Accessories: Full body pads
◼ Accessories: Leg rest extenders
◼ Accessories: Padded neck rest cushion
◼ Accessories: Wheelchair foot support
Additional Equipment That Would be Helpful
(But Not Included In The Demonstration)
(But Not Included In The Demonstration)
For more detailed guidance on overcoming mobility challenges refer to the
Overcoming Mobility Challenges Booklet.
Overcoming Mobility Challenges Booklet.