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ALS Caregiver Workshop Schedule
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Practical Knowledge Sharing for Overcoming the Daily Challenges of Living with ALS
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By St. Louis ALS Association Caregiversfor ALS Caregivers
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Upcoming ALS Caregiver Workshops (St. Louis)
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● Overcoming Mobility Challenges (On Site Only)
Fri May17, 2024 12:30-4:30
● Overcoming Relationship Challenges & When They Aren't Acting Like Themselves (Via Zoom Only)
Fri Jun 21, 2024 1:00-3:00
● Overcoming Upper Body Challenges (On Site Only)
Fri July 19, 2024 12:30-4:30
● Key Documents / Resources & Making a Difference (Via Zoom Only)
Fri Aug 16, 2024 1:00-3:00
● Overcoming Breathing & Swallowing Challenges (On Site Only)
Fri Oct 18, 2024 12:30-4:30
● Taking Care of the Caregiver (Via Zoom Only)
Fri Nov 15, 2024 1:00-3:00
Fri May17, 2024 12:30-4:30
● Overcoming Relationship Challenges & When They Aren't Acting Like Themselves (Via Zoom Only)
Fri Jun 21, 2024 1:00-3:00
● Overcoming Upper Body Challenges (On Site Only)
Fri July 19, 2024 12:30-4:30
● Key Documents / Resources & Making a Difference (Via Zoom Only)
Fri Aug 16, 2024 1:00-3:00
● Overcoming Breathing & Swallowing Challenges (On Site Only)
Fri Oct 18, 2024 12:30-4:30
● Taking Care of the Caregiver (Via Zoom Only)
Fri Nov 15, 2024 1:00-3:00
To register for these free workshops
Contact your ALS Association
Care Services Coordinator
Or go to ALSCaregivers.org
Contact your ALS Association
Care Services Coordinator
Or go to ALSCaregivers.org
The Purpose of The Workshops
In addition to insights shared by experienced caregivers, the workshops provide dedicated “hands-on” time, enabling you to experience the equipment and practice the techniques first-hand. On Alternate months, virtual workshops cover topics that do not benefit from hands-on practice. These meetings occur via zoom.
We recognize your time is a precious commodity and take a no-nonsense approach in addressing these topics.
Beyond the specific topics of the workshops, you will have the opportunity to talk with caregivers who have experienced some of the challenges you may be facing.
We recognize your time is a precious commodity and take a no-nonsense approach in addressing these topics.
Beyond the specific topics of the workshops, you will have the opportunity to talk with caregivers who have experienced some of the challenges you may be facing.
To see videos from previous workshops Scan this QR code to go directly to ALSCaregivers.org
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To register for these free workshops
Contact your ALS Association
Care Services Coordinator
Or go to ALSCaregivers.org
Contact your ALS Association
Care Services Coordinator
Or go to ALSCaregivers.org
The Purpose of The Workshops
In addition to insights shared by experienced caregivers, the workshops provide dedicated “hands-on” time, enabling you to experience the equipment and practice the techniques first-hand. On Alternate months, virtual workshops cover topics that do not benefit from hands-on practice. These meetings occur via zoom.
We recognize your time is a precious commodity and take a no-nonsense approach in addressing these topics.
Beyond the specific topics of the workshops, you will have the opportunity to talk with caregivers who have experienced some of the challenges you may be facing.
We recognize your time is a precious commodity and take a no-nonsense approach in addressing these topics.
Beyond the specific topics of the workshops, you will have the opportunity to talk with caregivers who have experienced some of the challenges you may be facing.
To see videos from previous workshops Scan this QR code to go directly to ALSCaregivers.org
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Why Should I Attend?
Feedback From Workshop Participants
"This was such a great use of your time! This was very informative. Many of our questions were answered!"
"Finally, a place where I could ask real questions and get straight answers and practical ideas."
"I can't believe you would do all of this for us."
"Showing and not just talking about the equipment and sharing your tips was so valuable"
"This was invaluable. I got to spend time with others who have been where I am now in our journey with ALS."
"The workshop gave us an opportunity to talk with other people living with ALS."
"Wonderful information and alot to learn"
"Seeing the equipment and techniques firsthand helped ease some of my fear and anxiety."
"This was such a great investment of my time. I am sorry it was real-life experience that is the basis for the training. It helps to know we're not alone though. God bless you all!"
"I was hesitant to come. I am so glad I did."
"This is what we need. We will be back for the next workshop."
"I always wanted to understand this topic better and didnt really know who to turn to and honestly was too afraid to ask."
"Much needed education! Great hands on demonstrations."
"This was extremely helpful. It made us aware of future challenges so we can be proactive instead of reactive!"
"I was amazed at how easy it was to use the equipment (not physically challenging"
"It was so helpful being able to see and get hands on with the different equipment and getting tips from those who have used it on what worked best for them"
"I am leaving this workshop with so much more knowledge. Thank you, Thank you!"
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"This was such a great use of your time! This was very informative. Many of our questions were answered!"
"I can't believe you would do all of this for us."
"This was invaluable. I got to spend time with others who have been where I am now in our journey with ALS."
"Wonderful information and alot to learn"
"I was hesitant to come. I am so glad I did."
"This is what we need. We will be back for the next workshop."
"Much needed education! Great hands on demonstrations."
"I was amazed at how easy it was to use the equipment (not physically challenging"
"I am leaving this workshop with so much more knowledge. Thank you, Thank you!"
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Meet Some of the Contributors
Who We Are
As we look into the eyes of the people with ALS & their caregivers, we already know the questions tumbling around in their minds and fears not spoken but held deep within their hearts. Because we've been there.
Only someone who has battled this disease 24 hours a day 7 days a week can truly understand the daily challenges.
We are not experts. We are not vendors.
We are a community of current or previous care givers who have experienced ALS personally.
Only someone who has battled this disease 24 hours a day 7 days a week can truly understand the daily challenges.
We are not experts. We are not vendors.
We are a community of current or previous care givers who have experienced ALS personally.
Brad is a caregiver specializing on pALS
On a Mission
Our mission is to enable everyone facing ALS to more quickly gain tangible and practical knowledge to overcome daily challenges by providing firsthand, life-learned advise and expertise base on our own experiences as people with ALS or caregivers to people with ALS.
John was
Kathleen's caregiver
Kathleen's caregiver
With a Vision
In our vision, no one battling ALS starts at ground zero. Instead, they build on a foundation of learnings shared by current and former ALS caregivers through caregiver led workshops and e-library content.