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Overcoming Upper Body Weakness Challenges
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Workshop Companion ReferenceLoading...
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Practical Knowledge Sharing for Overcoming the Daily Challenges of Living with ALS
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By St. Louis ALS Association Caregivers for ALS Caregivers
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Overview
2
Introduction
3
Who We Are
Upper Body Weakness Workshop
We are not experts. We are not vendors.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
THIS BOOK WILL BENEFIT: Those who attended the "hands on" workshop & want a quick refresher of the key take aways or those who were unable to attend but would still like to benefit from the demonstrations.
THIS BOOK INCLUDES:
The Purpose of This Workshop
To provide an opportunity for ALS caregivers to become acquainted with tools, or concepts that many have not previously been exposed to. Additionally, to enable everyone facing ALS to more quickly gain tangible and practical ideas to overcome everyday challenges.
To provide an opportunity for ALS caregivers to become acquainted with tools, or concepts that many have not previously been exposed to. Additionally, to enable everyone facing ALS to more quickly gain tangible and practical ideas to overcome everyday challenges.
● Neck & Hand Weakness
● Independent Dressing Challenges
● Personal Hygiene Challenges
● Drinking and Eating Challenges
● Phone & Computer Use
● Wheelchair Controls
● Available Resources
● Independent Dressing Challenges
● Personal Hygiene Challenges
● Drinking and Eating Challenges
● Phone & Computer Use
● Wheelchair Controls
● Available Resources
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What Is Included In This Booklet
Video's of demonstrations provided by caregivers covering common challenging upper body weakness scenarios along with the equipment and techniques to overcome them. For more detailed guidance on overcoming upper body weakness challenges refer to the Overcoming Upper Body Weakness Challenges Booklet. Last revision 1/20/23
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
Video's of demonstrations provided by caregivers covering common challenging upper body weakness scenarios along with the equipment and techniques to overcome them. For more detailed guidance on overcoming upper body weakness challenges refer to the Overcoming Upper Body Weakness Challenges Booklet. Last revision 1/20/23
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
To print the book, select this icon
3
Who We Are
We are not experts. We are not vendors.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
The Purpose of This Workshop
To provide an opportunity for ALS caregivers to become acquainted with tools, or concepts that many have not previously been exposed to. Additionally, to enable everyone facing ALS to more quickly gain tangible and practical ideas to overcome everyday challenges.
To provide an opportunity for ALS caregivers to become acquainted with tools, or concepts that many have not previously been exposed to. Additionally, to enable everyone facing ALS to more quickly gain tangible and practical ideas to overcome everyday challenges.
What Is Included In This Booklet
Video's of demonstrations provided by caregivers covering common challenging upper body weakness scenarios along with the equipment and techniques to overcome them. For more detailed guidance on overcoming upper body weakness challenges refer to the Overcoming Upper Body Weakness Challenges Booklet. Last revision 1/20/23
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
Video's of demonstrations provided by caregivers covering common challenging upper body weakness scenarios along with the equipment and techniques to overcome them. For more detailed guidance on overcoming upper body weakness challenges refer to the Overcoming Upper Body Weakness Challenges Booklet. Last revision 1/20/23
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
4
Overcoming Neck & Hand Weakness
5
Neck & Hand Weakness Scenarios / Demos
Equipment Used During the Demonstrations
Video: Workshop Scenario - I Can't Keep My Head Lifted
◼ Edema glove
◼ Rolyan resting split, Reaqer, Saebostretch
◼ Aspen collar, BAC neck brace,
◼ Headmaster collar, soft foam neck brace
◼ Savant Head Rest
◼ Thumb splint
◼ Dorsal wrist split
◼ Power Chair Arm Pads
◼ Power Chair Head Mounts
◼ Twist Bendable or Travel Neck Pillow
◼ Purewave pada cordless handheld massage
◼ Moist Heat wraps, microwavable neck wraps
◼ Shoulder & Neck heating pads
◼ Rolyan resting split, Reaqer, Saebostretch
◼ Aspen collar, BAC neck brace,
◼ Headmaster collar, soft foam neck brace
◼ Savant Head Rest
◼ Thumb splint
◼ Dorsal wrist split
◼ Power Chair Arm Pads
◼ Power Chair Head Mounts
◼ Twist Bendable or Travel Neck Pillow
◼ Purewave pada cordless handheld massage
◼ Moist Heat wraps, microwavable neck wraps
◼ Shoulder & Neck heating pads
For more detailed guidance on overcoming upper body challenges refer to the
Overcoming Upper Body Challenges Booklet.
Overcoming Upper Body Challenges Booklet.
5
Neck & Hand Weakness Scenarios / Demos
Video: Workshop Scenario - I Can't Keep My Head Lifted
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Video: Workshop Scenario - Neck Support Alternatives
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Overcoming Neck & Hand Weakness (Continued)
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Neck & Hand Weakness Scenarios / Demos (Continued)
Neck & Hand Weakness Scenarios / Demos (Continued)
Video: Workshop Scenario - Head Stabilizer on Wheelchair
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Video: Workshop Scenario - Dangling Arms
