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Overcoming Breathing Challenges
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Workshop Companion ReferenceLoading...
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Practical Knowledge Sharing for Overcoming the Daily Challenges of Living with ALS
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By St. Louis ALS Association Caregivers for ALS Caregivers
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Overview
2
Introduction
3
Breathing Challenges
Who We Are
THIS BOOK WILL BENEFIT: Those who attended the overcoming breathing & swallowing challenges workshop & want a quick refresher of the key take aways or those who were unable to attend but would still like to benefit from the demonstrations.
We are not experts. We are not vendors.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
The Purpose of This Book
THIS BOOK INCLUDES:
● Breathing Therapy
● Inhalers & Nebulizers
● Occasional Breathing Assistance
● Full-Time Breathing Assistance
● Cough Assist & Cough Vest
● Drooling & Suctioning
● Inhalers & Nebulizers
● Occasional Breathing Assistance
● Full-Time Breathing Assistance
● Cough Assist & Cough Vest
● Drooling & Suctioning
What This Is Not: This is not a therapy or group counseling session. This is not a vendor sales pitch or health care experts providing “book based” advice.
What This Is: Video's of demonstrations provided by caregivers covering common challenging breathing scenarios along with the equipment and techniques to overcome them.
For more detailed guidance on overcoming breathing challenges refer to the Overcoming Breathing Challenges Booklet. Last revision 5/19/23.
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
What This Is: Video's of demonstrations provided by caregivers covering common challenging breathing scenarios along with the equipment and techniques to overcome them.
For more detailed guidance on overcoming breathing challenges refer to the Overcoming Breathing Challenges Booklet. Last revision 5/19/23.
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
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3
Who We Are
We are not experts. We are not vendors.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
We are a community of current or previous care givers who have experienced this disease personally and have battled ALS 24 hours a day, 7 days a week. We had to “learn on the job”. We immersed ourselves in all available information resources and in people networks seeking practical solutions to help us manage daily living challenges.
The Purpose of This Book
What This Is Not: This is not a therapy or group counseling session. This is not a vendor sales pitch or health care experts providing “book based” advice.
What This Is: Video's of demonstrations provided by caregivers covering common challenging breathing scenarios along with the equipment and techniques to overcome them.
For more detailed guidance on overcoming breathing challenges refer to the Overcoming Breathing Challenges Booklet. Last revision 5/19/23.
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
What This Is: Video's of demonstrations provided by caregivers covering common challenging breathing scenarios along with the equipment and techniques to overcome them.
For more detailed guidance on overcoming breathing challenges refer to the Overcoming Breathing Challenges Booklet. Last revision 5/19/23.
If you have learnings to share or would like to join our efforts, email learnings@ALSCaregivers.org
4
Breathing Therapy
5
Equipment Used During The Demonstrations
Exercising The Lungs
◼ Acapella Vibratory inhalers
◼ Medical alert bracelet
◼ Nasal Cannula
◼ Oxygen Concentrator
◼ Oxygen tubing
◼ Portable Oxygen (e.g. Inogen)
◼ Pulse Oximeter (e.g. ChoiceMMed).
◼ Respironics Threshold IMT Inspiratory Muscle Trainer
◼ Voldyne 5000 spirometer
◼ Medical alert bracelet
◼ Nasal Cannula
◼ Oxygen Concentrator
◼ Oxygen tubing
◼ Portable Oxygen (e.g. Inogen)
◼ Pulse Oximeter (e.g. ChoiceMMed).
◼ Respironics Threshold IMT Inspiratory Muscle Trainer
◼ Voldyne 5000 spirometer
Video: Demonstration of the Lung Functions
For more detailed guidance on overcoming breathing challenges refer to the
Overcoming Breathing Challenges Booklet.
Overcoming Breathing Challenges Booklet.
5
Exercising The Lungs
Video: Demonstration of the Lung Functions
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6
Breathing Therapy
7
Exercising The Lungs (Continued)
Video: Using a Pulse Oximeter
Video: pALS Using a Variety of Devices To Exercise The Lungs
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